Nihal had to stop school because he was being bullied |
Nihal, who lives on the outskirts of Mumbai, India, has now started clinical trials for a cancer drug that doctors hope will slow the ageing process. It is not clear if his life expectancy will be lengthened following the research at Progeria Research Foundation in Boston.
Nihal is 4ft tall and weigh just 2 stones |
In the meantime he has devised a bucket list in the hope of fulfilling his dreams such as meeting Honda's ASIMO robot and going to Disneyland in California.
His father Srinivas said: "No matter how much time is left, I just want to try to fulfil my son's wishes for now."
Nihal appeared healthy until 18 months old when his parents noticed some light patches and dark spots on his skin. He then stopped developing normally, his joints became weak, his hair fell out and his skin aged rapidly. For years, the family did not know what was wrong with him until five years ago when medics gave them the devastating news he had (HGPS). It is caused by a genetic mutation in the gene LMNA, which is responsible for producing a protein that helps maintain the structural integrity of the nucleus in cells.
Nihal went to Boston last December to undergo this treatment, which uses a cancer drug called Lonafarnib and reverses changes in blood vessels. Doctors do not know if the treatment will make him live longer but it has helped him improve the flexibility of his joints and helped him gain 4lbs (2kg) in weight.
His family say he has a kind, gentle nature and gets on well with his two healthy siblings, sister Sonu, 11, and a brother Lucky, 4. Now, he says he has three wishes in his life; to meet ASIMO The Robot made by Honda in Japan; to go to Disneyland in California and another secret wish he says he will reveal later in his life.
Source: Mirror
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